Patient stories on ThymicUK website
For Patients
Welcome!
Upcoming events
Update on the Multidisciplinary Management of Thymic Carcinoma
The International Thymic Malignancy Interest Group (ITMIG) and the American Radium Society (ARS) invite you to: the Joint Webinar Update on the Multidisciplinary Management of Thymic Carcinoma held in celebration of the […]
ITMIG2023 Annual Meeting
SAVE THE DATE! 13th Annual Meeting of ITMIG (ITMIG2023) CLICK HERE to visit the conference website October 4- 6, 2023 VENUE: Memorial Sloan Kettering Cancer Center, New York, USA […]
Webinars
TUTOR and EURACAN Webinar for Patients
Patient stories
Rare cancers of the thymus. What they are and how you can help.
Geralyn Johnson, a patient fighting with a thymoma – the malignant neoplasm of the thymus, talks about this rare disease and the activity of the International Thymic Malignancy Working Group (ITMIG).
There are active groups on Facebook for Thymoma/Thymic Carcinoma patients and others interested in these diseases
Here are some statistics about the Thymoma Support Group. This group has 2300 members from 94 countries! The highest populations are from the US, UK, AUS, Philippines & Canada, respectively. The group is split 74% woman & 26% men. Age ranges are 35-44 being the most followed by 45-54, 55-64, 25-34, 65+ and then 18-24.
There is also a Thymic Carcinoma group and an ITMIG Advocates group.
TUTOR is an active Italian patient organization established in 2017 to support for those having to cope with thymomas and thymic carcinomas.
TUTOR:
- Creates a place where patients and their families can meet, understand, find one another, and share their experiences
- Promotes and spread knowledge and information regarding rare thoracic tumors, problems, and expertise centres
- Promotes the centrality and participation of patients to lead them to take a proactive and responsible role in disease management and decision-making processes (empowerment/engagement)
- Consolidates the relationship and collaboration with the clinical and scientific community involved in Rare Thoracic Tumors
- Promotes and support research on rare thoracic cancers
- Advocates for Rare Thoracic Tumor patients in Italy and in Europe