For Patients

Welcome!

Foundation for Thymic Cancer Research

 

Remember!

You are not alone!

 

contact us

Upcoming events

Webinar for Patients: Experts explain, part 4.

Dear Patients, It is time to announce the fourth webinar of our series EXPERTS EXPLAIN: Dr. Arun Rajan from the National Cancer Institute, the National Institutes of Health (NCI/NIH), Bethesda, USA […]

RECORDINGS – Webinars for Patients 2021: EXPERTS EXPLAIN

In 2021 ITMIG invites thymic epithelial tumor patients for a new series of webinars: EXPERTS EXPLAIN. Our experts are explaining the meaning of many definitions and are answering patients’ questions related with diagnosis and treatment of thymic epithelial tumors. Each webinar contain short presentation(s) and live Q&A (Questions and Answers) part.

Main organizers:

Malgorzata Szolkowska, pathologist, the National Tuberculosis and Lung Diseases Research Institute, Warsaw, Poland

Pam Bruce, Executive Director of ITMIG, New York, USA

Edith Marom, diagnostic radiologist, The Chaim Sheba Medical Center, Ramat Gan, Israel

WEBINAR 1. 


This is a recording of the first webinar.

The video contains two presentations dedicated to radiological and histopathological definitions:

1. “Imaging of thymic tumors”, Dr. Chad Strange, Assistant Professor of Thoracic Radiology, University of Texas MD Anderson Cancer Center, Houston, Texas, USA;

2.“How should I understand my diagnosis?”, Dr. Jan von der Thüsen, Consultant Histopathologist, Erasmus MC, University Medical Center Rotterdam, The Netherlands.

Moderator of a webinar: Dr. Malgorzata Szolkowska from the National Tuberculosis and Lung Diseases Research Institute, Warsaw, Poland

WATCH THE RECORDING

WEBINAR 2. 

The second webinar was dedicated to surgical treatment of thymic tumors.

Our expert,

Dr. Paul Van Schil, from the Thoracic and Vascular Surgery, the Antwerp University Hospital, Edegem (Antwerp), Belgium

was talking about: “Surgical treatment of mediastinal tumours: from maximally invasive to minimally invasive techniques”.

The webinar was moderated by Dr. Usman Ahmad from the Heart, Vascular and Thoracic Institute, the Cleveland Clinic, Cleveland, OH, USA.

WATCH THE RECORDING

WEBINAR 3. 

In this webinar radiation oncology matters and definitions will be explained.

Dr. Annemarie Fernandes Shepherd, from the Department of Radiation Oncology, the Memorial Sloan Kettering Cancer Center, New York, USA

was talking about “Radiotherapy of thymic epithelial tumors”.

The webinar was moderated by Prof. Conrad Falkson from the Queen’s University and Kingston Health Sciences Center, Kingston, Ontario, Canada.

WATCH THE RECORDING

Rare cancers of the thymus. What they are and how you can help.

Geralyn Johnson, a patient fighting with a thymoma – the malignant neoplasm of the thymus, talks about this rare disease and the activity of the International Thymic Malignancy Working Group (ITMIG).

There are active groups on Facebook for Thymoma/Thymic Carcinoma patients and others interested in these diseases

Here are some statistics about the Thymoma Support Group. This group has 2300 members from 94 countries! The highest populations are from the US, UK, AUS, Philippines & Canada, respectively. The group is split 74% woman & 26% men. Age ranges are 35-44 being the most followed by 45-54, 55-64, 25-34, 65+ and then 18-24.

 

There is also a Thymic Carcinoma group and an ITMIG Advocates group.

Webinar for Patients, 2020/09/22

A summary of a Webinar for Patients is now available.

You can find here:

  • Audio recording of the webinar
  • Presentation of Dr. Arun Rajan
  • Responses to some chat questions not answered during webinar

Click here!

Thank you for your attendance and see you next time!