TUTOR 

is an active Italian patient organization established in 2017 to support for those having to cope with thymomas and thymic carcinomas.

TUTOR:

• Creates a place where patients and their families can meet, understand, find one another, and share their experiences
• Promotes and spread knowledge and information regarding rare thoracic tumors, problems, and expertise centres
• Promotes the centrality and participation of patients to lead them to take a proactive and responsible role in disease management and decision-making processes (empowerment/engagement)
• Consolidates the relationship and collaboration with the clinical and scientific community involved in Rare Thoracic Tumors
• Promotes and support research on rare thoracic cancers
• Advocates for Rare Thoracic Tumor patients in Italy and in Europe

ThymicUK

is a registered charity established by patients with thymic cancers, their carers, families and friends. Our purposes are to provide support, advocate and share information, facilitate research and ultimately to improve the treatments available for these rare cancers in the United Kingdom. Through these endeavours ThymicUK hopes to increase the overall survival and quality of life of patients with thymic cancers.

The Thymic Ghana patient group

in Ghana started in 2023 with one of the core objectives being creating awareness to the public and also creating an eco system where people interested in this medical condition can convene. Thymic  disorders are very rare medical condition and liaising with International Affiliate like the International Thymic Malignancy Interest Group to also share the latest research with patience and health personal in Ghana. In the future we  hope to deepen our activities and create more awareness of the disease by supporting patients  in Ghana

Nowotwory grasicy. Grupa thymoma PL

is a patient support group in Poland. The group was founded in 2023 and is growing rapidly.
Thymic carcinomas, thymomas and thymic neuroendocrine tumors are very rare cancers. It is hard to find a group or information about this cancer in Polish. That’s why this group was created for patients with this cancer. Everyone can share their case and treatment here. It may help other patients!

Nowotwory grasicy. Grupa thymoma PL

to grupa wsparcia dla pacjentów w Polsce. Grupa powstała w 2023 roku i szybko się rozrasta.
Raki grasicy, grasiczaki i guzy neuroendokrynne grasicy to bardzo rzadkie nowotwory. Ciężko znaleźć grupę czy informacje na temat tego nowotworu w języku polskim. Dlatego powstała ta grupa dla pacjentów z tym nowotworem. Każdy może się tu dzielić swoim przypadkiem i leczeniem. Może to pomóc innym pacjentom!

Thymic Carcinoma – Thymoma | Support group for patients in the Czech Republic

This group was created as a safe and supportive space for everyone affected by a diagnosis of thymoma or other thymus tumors – whether they are patients themselves, their loved ones, or caregivers. In the group, members share their experiences, questions, concerns, and practical advice about living with this rare diagnosis. The emphasis is on information based on expert recommendations and scientific findings (evidence-based medicine). Members will find a space for support, understanding, and mutual strength.

Rakovina brzlíku – Thymom | Podpůrná skupina pro pacienty v České Republice

Tato skupina vznikla jako bezpečný a podpůrný prostor pro všechny, kterých se týká diagnóza thymomu nebo jiných nádorů brzlíku – ať už jde o samotné pacienty, jejich blízké nebo pečující osoby. Ve skupině si členové vzájemně předávají zkušenosti, sdílejí otázky, obavy i praktické rady týkající se života s touto vzácnější diagnózou. Důraz je kladen na informace založené na odborných doporučeních a vědeckých poznatcích (evidence-based medicína). Členové zde najdou prostor pro podporu, porozumění a vzájemnou sílu.