Webinar for Patients

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Webinar for Patients

September 22 @ 10:00 - 11:00 EDT

Free

The questions I would like to ask my doctor

A special webinar for patients!

Our experts that will respond your questions:

Prof. Joshua Sonett,

Thoracic and Cardiac Surgery

NewYork-Presbyterian/Columbia University Medical Center

New York, USA

Arun Rajan, Senior Clinician

Medical Oncology

National Cancer Institute, National Institutes of Health (NCI/NIH)

Bethesda, USA

 

 

To join our webinar you will need to register. Registration is free of charge. Webinar will be transmitted through WebEx platform.

You can enter your question in a “Comment” box below. The doctors will answer your question during webinar.


REGISTRATION IS OPENED! Click HERE


 

Details

Date:
September 22
Time:
10:00 - 11:00 EDT
Cost:
Free
Event Categories:
,

Organizer

the International Thymic Malignancy Interest Group
Email:
pbruce@thymic.org
Website:
https://www.itmig.org
8 Comments
  1. Is there anything we can do to stop a reoccurrence of thymoma and does removing the thymus make our immunity weakened?

  2. I have Masaoka Stage I Type AB thymoma. It was 7.3 x 5.6 x 3.3 cm. Transcapsular invasion could not be determined: focal gross defect in capsule. Radiation therapy has been recommended.
    1. I am 69 years old. Given that thymoma is slow-growing, how long may it be before a recurrence would cause problems? Given my age, am I likely to die from something else? (Just thinking about the “watch and wait” algorithm applied to prostate cancer, for example)

    2. How long had my thymoma been growing in my chest?

    3. What does “focal gross defect” mean?

  3. Any insight as to pregnacy and active disease. Currently 40 years old, wanting to get pregnant and have been trying for past year; however, recent scan showed growth in one nodule from 1.1 to 2.7 in left lung. I’m not in treatment, currently in monitoring phase with scans every 3-4 months for the past 2 years.

  4. I was diagnosed with Thymic Carcinoma, stage 4A, five years ago. I am currently being treated with Sutent, which I have taken for 2.5 years.
    It is strong medication which has destroyed my thyroid, but in general, I have tolerated it well and it has kept my cancer in check. My two questions are:

    1) For how long can one safely be on Sutent?

    2) What is the current view on immunotherapy for those with Thymic Carcinoma? Is it widely recommended or are there
    still concerns about it?

  5. Thank all of you for the questions to our experts! You bring up very important issues.
    More questions or doubts? Don’t hesitate to write to us!

  6. Hello, finding I had extemely low white blood cell count, I was diagnosed with a huge thymoma.which was successfully removed in 2010. My white blood cell count improved but stayed low. I was then diagnosed with Good syndrome. In 2013 multiple.metastasis.were found in the lungs, too small and.too slowly growing for.chemotherapy. i am not treated for the thymoma as such. In 2018 I was diagnosed with anti immune hemolytic anemia, for which i have since been treated with Prednisone. It turned out to be a.chronic condition which worsens occasionally, like after a pneuminia earlier.this year. The metastasis are growing very slowly, but I think there are many, the biggest is now 2,5 cm. They don’t bother me but the low white and red blood cell.count do. The relationship between the blood problems and the thymoma is presumed, not established. I see several doctors, the hemotologist mostly, but also pneumologist, immunologist and the pneumologist at the Netherlands cancer institute. The big question is there chemo or not to chemo. Most doctors say: last resort. One says: better when yoi are still fit than wait until your condition worsens. So, it is tricky for a patient to know who’s advise to follow. Plus nobody can give me any indication what the prognosis is on the blood values. There are some date.for.the prognosis on the metastasis but I get.nothing on the real problem, the weak immunity and.the anemia. So that’s what I would really like.to know more about so I can make a reasonable choice.when the time comes. I am 66 a mother of 4 and.grandmother.of nearly 6 and a passionate gardener. Thank you for this initiative!
    Annemiek

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